Hello! It's LYNN again with my medical update. I have been steadily recovering since my 2 week check up and yesterday's appointment was on the 3 week post surgery date. Seems likes months already, not weeks. Yes, all agree I have been very impatient with my recovery progress even though I guess I do know I am ahead of schedule at this point. We met with Dr. Choong, the medical oncologist, yesterday and in addition to discussing what the chemotherapy schedule would be, they also added a new update to the previous pathology report we had received during our last post surgery appointment. They let us know there are a number of additional lymph nodes involved/cancerous that are in locations near my heart and other vital organs which made it impossible to remove them during the surgery in which they removed my lung. This means that I will also need to have radiation therapy for six weeks following my recovery from chemotherapy.
My chemotherapy schedule will start on Friday, February 13th and will be ONE day of chemo every 3 weeks, and I will have 4 total treatments. That will take me out to Friday, April 17th which will be my final treatment. I will then be off a few weeks at the perfect time to attend Danny's graduation from Regis University in Denver on Sunday, May 3rd. After that, we will start the six weeks of radiation which would continue daily until just about the middle of June...and we now know that these things can always change. So our current saying, "Is it what it is". And that is how we are handling each new challenge we are given, "We'll deal with it".
There were 2 unexpected bright pieces of information we received during our appointment, there is a very good chance that I will NOT loose my hair during my specialized type of chemotherapy and I will continue to be able to have my NIGHTLY glass of RED WINE!!! LIFE IS GOOD!
I think I will be returning to work, on a part-time basis starting next week. I am still not allowed to drive so my work will be limited to what I can accomplish in the office. And I am exhausted by mid-day and need my naps right now. But I know I need to get out of this house on a regular basis. A couple of other things I have learned, my one lung will expand and do some of the work of the one I lost, but this process takes about two years to complete so I have to remain SOMEWHAT calm during all these very exciting MU basketball games because I run out of breath quite quickly right now. And this BELOW 0 weather has also been very difficult when I try to catch my breath or even take ONE breath outside. As the weather and I improve, I hope to get back to a little bit of social life outside my house in the future. I do need to stay healthy but haven't moved to the 'blue mask' idea yet.
I am thankful for all the people at Froedtert who are taking very good care of me. I am also thankful for all of you sending me card after card, and note after note, email after email, helping me to keep my positve attitude of gratitude. I thank God everyday for all that I have been given and ask for your continued prayers that I can accept and cope with all that I need to in the upcoming months and years.
I will probably not add another posting until after the start of my chemo on February 13th. A number of friends have responded that they were unable to post comments on this blogspot. I have changed the settings so see if it is easier now. For those of you who don't have it, my personal email address is lynnsteinle@aol.com PLEASE understand that I cannot respond to each and every email I receive, I am having a hard enough time trying to keep up with THANK-YOU cards and don't know if I will ever finish the ones on which I am behind!! BUT each and every piece of correspondence lifts me and my spirits so please keep up the communication on your end if that's not too much to ask!! I have not needed meals at this time but thank you for all the offers. Your words, thought and prayers have kept me feeling fantastic and they are what I need right now, and it's easier than cooking, right?? As I have needs arise in the future, I will let you know. I love you all!!
Lynn
Tuesday, January 27, 2009
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Lynn- I want you to know you have been in our entire family's prayers. I know dear God is wrapping his arms around you!
ReplyDeleteThe Buco Babes are anxiuosly awaiting your return.
Love and prayers~ KAthy Myers
Oh Lynn! I exchanged VM with Mary last week but now you have told me exactly what I was checking in on! I am so sorry to hear that you will have to do radiation following your chemo but the potential for no hair loss is good news and yes, the red wine is always a plus and hope it will continue to sound good to you through it all!
ReplyDeleteI am also very glad to hear that you are at Froedtert for your treatments - I have and continue to experience only the best care there and hope that you have the same experience with the treatment nurses and everyone involved! The worst part of the Day Care Treatment is the waiting - be sure to bring a book or something to do and that is more for in the waiting room than for actually during the treatment!
I know you are strong and you will do great through all these adventures that you will face but just know that we are thinking of you along your way and hopefully we'll see you at the Centos along the way too! Or our paths may cross at Froedtert!
Be sure to take it easy and to eat good along your way and we'll be in touch!
Love, Kelly.
Lynn - I want you to know that you continue to be in my prayers. Sending lots of positive energy your way! Please keep yourself healthy and safe. By the way, I heard a song this morning, and it made me think of you. Three Little Birds by Bob Marley. "Don't worry about a thing...cause every little thing is gonna be alright!" Take care of yourself!!
ReplyDeleteSincerely, Tanya Bissen
Hi Lynn,
ReplyDeleteGlad to hear that you're doing well so far and that you can still have your wine.....
Keep up the good work with healing and this will be done sooner than you think.My thoughts and prayers are with you.
Michelle Casper
Lynn
ReplyDeleteI am so glad to hear that you are doing well. I miss your smiling face when I stop into your office. I continue to say prayers for you and your speedy recovery. I know you are a fighter and tremendous person and you will continue to fight this. You are an amazing person.
Tina Bender